Sadie had a victory. She finally went three months between visits to Primary's Medical Center. This is a first since she had her transplant! On the flip side of medical things, I took Trevin to his normal check up and left the appointment with referrals to specialists. During the month of August, he will have seen an ophthalmologist, cardiologist, and urologist. Scary for me. So far, he's only seen the ophthalmologist where they look for bumps in the eyes, brain tumors, etc. Kids with NF are checked for these yearly; we were told he looks good. We'll see the other specialists soon.
Medical stuff aside, we have been busy and happy. It's been a good summer for our family. Here are some pictures of our activities-- and all of these fun pictures where taken at events happened in the past month! Crazy busy, crazy fun!
|Sadie caught the bouquet at Robyn's wedding and quickly asked her cousins if they'll be her bridesmaids. I asked her to wait a few years before choosing her man.|
We loved it! A family asked if they could hold a fund raiser for Sadie and Trevin's medical expenses. Four members of their family have had or currently have cancer. This is the fourth year the Fullmer and Young families have put on the motorcycle rodeo. What a positive experience for our family. A few days before it was held, our doctor found a heart murmur at Trevin's appointment and referred us to specialists. This event helped me forget my worries and enjoy an uplifting day with family, friends, and others who came to support this wonderful event. We can't wait to go again next year. Thanks to everyone who helped.
|Sadie, Alyssa and Rachel singing their hearts out. Rock on!|
|Natalie & her good friend Maycee making fun music. It makes me smile to see them together. They are only three months apart in age.|
|We had a lot of family support-- thanks for traveling everyone!|
|YMCA dance competition.|
|Sadie and Uncle Steve on a ride. Alyssa and her pink boots looking on.|
|Trevin & Uncle Steve. Trevin LOVED the motorcycles!|
|Aunt Nickole racing. Her brother and sister and Steve competed also. So much fun!|
|All worn out|
LIVER TRANSPLANT FAMILY PICNIC
Primary Childrens held a picnic for the families of children who have either had a liver transplant or who have liver disease and are waiting for one. Healthy children ran around happily getting their faces painted, getting balloon animals and crowns, and eating. Our social worker, Barbie, told David and I later that our girls got cotton candy from her three times! It was wonderful to see other liver friends, our friends that work at the hospital and to make new friends.
My tender mercy of the day was being able to meet a family who has a son waiting for a transplant and a daughter who has NF1. (There is no correlation between the liver probelms or NF for either of our families.) I don't know what the chances are of two families who have children with both of these rare problems being able to meet. They have been a blessing to me. Being able to see a healthy teenager who has NF was balm for my heart. I hope the best for them and their son's transplant.
|This is Dr. Book, head of the liver transplant department and Sadie. She's awesome. We love our doctors and nurses!|
|Happy Birthday to me!|
Following her recording with Story Corps, Sadie was asked to come back to Primary's to make a video about her experiences at the hospital. She chose to have one of her favorite people, our social worker Barbie, be in the movie with her. Sadie loves attention, was poised and confident. Cameras rolled. She told her transplant story and had a blast. It was good to see how far we've come. Her liver story will be on the Primary Childrens Medical Center website from October to December.
|Barbie and Sadie in the new music therapy room at the hospital with the film crew.|
|The newly remodeled Forever Young Zone at Primary's. This is where children in the hospital and their siblings can play. She is being taped for the hospital web site.|
|Okay, I didn't notice that Sadie's eyes were closed when I took this. She is with Barbie Robinson, who we call our angel. She helped us so much during Sadie's transplant. We are glad she is now our friend.|
|More cousins, relaxing after baby Boden's baby blessing.|
|Give Kids the World (where we stayed for Sadie's Make-A-Wish) gives wish families tickets to get into some parks for one year. We were able to take our family to Lagoon after Sadie's check-up at Primary's for a fun day in the sun. Thanks Make-A-Wish and Lagoon! By the way, I know I already said this, but Hooray for Sadie being healthy enough to go three months between check-ups at Primary's!|
|Smiles! These sisters loved the rides!|
|Tea Cups, swirls of fun!|
We have had some scary and hard experiences. The love, friendship and kindness so many people have given us boost us through these times. I can't express my gratitude for the continued prayers and support given in behalf of our family. Thank you!