So many of the posts I write are about the seemingly endless medical stress our family is facing. Almost immediately after Sadie was released from the hospital, a stomach illness hit our family. Over the course of the next week and a half, most of us got sick. One person at a time. It was an extremely frustrating month (Trevin's updated diagnosis, moving, Sadie's hospitalization, and then the stomach flu.) I feel like a broken record many days, but tonight, I have fabulous news! Trevin is walking!!! [ A sigh on relief is appropriate at this time.]
Last week, Trevin turned two years old. For a year, he has been scooting on his bum. We started physical therapy with him a couple of months ago. He's been able to take a couple of steps at a time. Tonight he took 25 steps in a row-- well over double the maximum amount I have ever seen him walk. Then he continued to walk very wobbly from his Dad to the couch, turn around and walk back to his dad. Over and over again. Then he sat down and scooted everywhere else until bedtime. But, he did it. Relief, joy, and grateful describe my emotions.
In other fun news, Trevin can also say Rachel's name. They play a game at bedtime where she tells him "Bye Trevin." He now replies with "Bye A'hel." They laugh and laugh. I love that he can say the name of one of his sisters. In the past week he has learned to sign cracker and please. He is beginning to make different animal sounds and pretend to talk. I have longed and prayed for him to be able to do these basic things for a long time. Kids a year younger can do many things that he struggles with. I am extremely grateful when we are blessed to see him progress.
Also, Trevin's breathing problems have cleared up since we moved. His asthma and allergies are so much better-- I don't know what was making him sick in our old house. I am so grateful he can breath better. What a blessing!
Sadie had a field trip today with her first grade class. We went to a cheese factory, had a picnic, and then walked around Rigby Lake. Sadie fatigues easily. I took the wagon and pulled her so that she could participate. The kids and teachers are extremely kind to her. I am grateful for the wonderful teachers my daughters have been blessed with. They and the other staff members at the schools have been our angels.
Tonight Natalie and I went on a date... sort of. First, I took her to get her 11 year old immunizations. She got three shots. Not so much fun. Then we went to the store where she bought her first make-up with money she has saved up. I'm not sure I like having her grow up so quickly, but it is fun to see the young lady she is becoming.
Alyssa, Alyssa, Alyssa, she is hilarious and sassy. Twice a week she and her best friend Brooklyn have preschool. Since the move, we are next door neighbors. Alyssa asks me about 20 times a day when she gets to have preschool and which house it is at. Brooklyn's mom and I take turns teaching. I am very grateful for this. It gives me a break and allows Alyssa to learn and have fun. It is the highlight of her week. Thanks Becky! We have always had great moms to switch with where ever we live. Thanks friends!
SIBS Day: Super Important Brothers and Sisters Day at Primary Childrens Hospital was great! Natalie, Rachel and Alyssa were each able to feel pampered and important. They met other children who have a sibling that spends a lot of time in the hospital. They played games and ate pizza. They were able to see that other families have problems too. It was a very positive event for our kids. Alyssa made a super hero cape and crown. Natalie and Rachel made tye dye shirts by squirting colors on with medical syringes. Unfortunately, the colors weren't waterproof-- they washed right off. Which means, we can do it again!
Story Corps: Sadie was invited to record her story at the hospital while her sisters attended SIBS Day. David asked questions to Sadie and myself. We spoke into microphones and described her transplant experience. The recording will be kept at the hospital, Story Corp, and sent to the Library of Congress in Washington D.C. There is an extremely slim chance part of it will be used for National Public Radio. Talking about our experience brought back a lot of tender memories. Trevin scooted happily and quietly around the room while we spoke.
MOTORODEO: The last day Sadie was in the hospital in May, I received an unexpected phone call. Our family has been invited to have a Moto Rodeo held for us. A family from Mud Lake has held it every year for five years, after having family members get cancer. They asked if they could do it for us this year. There is nothing quite so humbling as being told your little son has a "severe" medical condition, or as having a child in the hospital. We do not know this family and are also humbled by their desire to help us. Already, they have shown us great kindness. If you are on Facebook (and someday I will be again), you can visit their page Motorodeo for more information. There is also a recent picture of our family that my sister took. I don't have a digital copy yet, so go to their web site to see it and for more info. on the rodeo. I think it looks like a lot of fun and our girls are so excited! Please spread the word to anyone who you think would be interested.
Thanks to everyone who continues to support us. We are extremely grateful. And hey, my son can walk!