Last night, Sadie and I arrived home from the hospital. She is doing well. All in all, her problems were much less serious than they might have been. She had a combination of EBV (a mono virus), a severe sinus infection, fevers and strep throat. Her body was worn out trying to fight them all. Doctors suspect that the sinus infection could have started a month ago and actually thrown off the results of her blood draws. Her black eye, they now suspect originated from a large pocket of sinus fluid located below her eye, shown on the MRI. Her symptoms were the same as other serious complications of liver transplant.
Today, her nurse Sharon called to let us know the results of her EBV testing arrived. A few weeks ago they told me that this virus had "skyrocketed" in her blood. I asked what the levels had been. Sadie's EBV levels were at 371,000. The levels we got back today were 4,081-- a "manageable" level for a person with this virus. No wonder Sadie felt so awful and couldn't get better. We will take her back to Primarys for another ultrasound of her arteries and liver soon.
I am grateful for the many doctors, nurses, and others that continually help us. I am also grateful for support of family, friends and others who we have met as we continue to take a medical journey with Sadie and now Trevin.
Coming home is always wonderful and hard. It is very emotional for me each time. By the time we got home last night, I was beyond grumpy. Grouchy to the point that I'm sure my family wondered if I even wanted to be home. They had planned a fun surprise and all I wanted to do was give them hugs and crawl into bed. I am grateful that they forgive me for being cranky. Being able to sleep at night, with no alarm monitors, nurses, or announcements over speakers is wonderful. In fact, I think I'll go practice sleeping now so that I will be a nicer person for my family to live with tomorrow. They are pretty awesome. It is good to be home.