Well, what can I say? We're back in the hospital. Sadie hasn't felt good for about four or six weeks. Her labs have been goofy and she's been extra tired. She's also had some odd symptoms that I think I wrote about last time. She lost her first two teeth about a week and a half ago. She began running fevers and to complain of headaches, eye pain and had a runny nose. I took her to the doctor last Monday. On Friday evening, she was leaning on my shoulder, got up to go to the bathroom and hurried back to tell me that my black shirt had given her a black eye.
Sure enough, her eye was black and quickly swelling shut. I called Primarys and was told to take her to our local doctor (to determine if Sadie needed to go to Primarys by ambulance or to see if it could wait until Saturday or Monday). They were worried that her blood wasn't clotting. The two doctors then did a phone consult and we were sent home with orders to be at Primarys by noon the next day.
So far, Sadie's had numerous blood tests, three IVs, two MRIs and one ultrasound. The first MRI checked her brain activity; the second checked out her abdomen region for lymph nodes. The ultra sound tested her liver arteries and veins. She has a major sinus infection which is probably the cause of her black eye. Doctors had been worried that bruising easily could mean her liver and lymph nodes weren't clotting her blood. Not being able to have blood clot is a big deal. They have also checked her for a disease that sounds Chinese to me-- something like Kawasaki (like a motorcycle I'm told). She doesn't have that, and her clotting looks normal. So far, her problems are all workable. The mere fact that they are not life threatening makes them seem manageable to me. Tomorrow we'll get more blood work and either go home or stay for a few more days for more testing (liver biopsy and another kind of scope thing to take biopsies from her esophagus all the day down to her stomach). Sounds fun, huh?
Sadie met her first ENT (ear nose and throat doctor) who tried to put a camera up Sadie's nose for a better look. Didn't work to well. Sadie doesn't like being poked and prodded. And who likes other people sticking things up their nose? Not us.
We got to paint Sadie's window. That was fun for both of us. Sadie directed and painted. I painted and followed orders. She painted a bunny rabbit, tree, sunshine and a nest of poisonous snakes. I painted the outline of a tiger and she gave it orange stripes.
We have watched a whole lot of TV. Bleh. I don't watch much at home and went to the hospital library today and got some books for us to read. The book cart also came around. Each child can choose a new, fun book to keep. Sadie picked out a fairy book. She has also made hospital dolls and enjoyed milkshakes from room service.
In other news, our move went well. The kids are loving the new yard. There is a giant sandbox. They are magnets to it. Natalie and Rachel are digging a large whole. Alyssa likes to play in the dirt with her barbie. Trevin loves being outside. They are all happy as can be and easily amused there. We also have a lot of their friends wander over to visit. It is pretty fun. Oh, time to go, Sadie wants to paint!